Scott's Celiac Page
is a very comprehensive gluten intolerance related site. A good place to start.The WWWebguides site has Information for Gluten-free and Wheat-free Diets. It is a complete guide for the celiac (coeliac) to diet, mailing lists and support groups. Put up by Peter Thomson in the UK. The most frequently visited celiac site and for good reason.
Ted Hodges has assembled the archives of the celiac mailing list at his site. It includes over 100 files, making it by far the largest collection of files on gluten intolerance, and related subjects, on the web. Includes the FAQ and a long file on celiac testing.
The CD Prevalence Study for the USA is a compaign to raise $600,000 for a large epidemiological study to show that celiac disease is as common in the US as it is in Europe. It has been organized by a group of individuals active in the celiac community.
More than three dozen Ron Hoggan Articles have been collected and put on the web. They argue that various other disorders of the body have strong gluten connections. Leading edge analysis of the medical literature.
Here is a page with annotated links to other pages on The Paleolithic Diet. Sometimes called the hunter/gather diet, this pre-agricultural diet is where our digestive systems have evolved to. It fits in well with the gluten-free diet.
I have been collecting various Recipes and Food Preparation Tips, mostly for alternative gluten-free grains, e.g. arrowroot, buckwheat, millet, and quinoa. Also other useful GF things.
JoAnn Betten of the PaleoFood mailing list has collected many recipes. All are gluten-free, and free of other Neolithic foods.
Lisa Lewis, PhD, has put up Understanding and Implementing a Gluten & Casein Free Diet. An excellent web page on diet and autism. Explains what is happening with intestinal permeability, etc. 46K
Bill Kane has a Celiac Sprue Safe Alcohol List.
Aileen Bennett's web page for the book Coping With Celiac.
Linda Blanchard's Wheat Free Zone is a site with some a forum, recipes, and a gluten-free foods database. See her Ingredients to Watch For (and Why).
Abigail Neuman has a page Is it FMS, CFS, or Celiac Disease?. Has the story of her 20 year struggle to find the correct diagnosis. A good read. Also a list of gluten-free foods.
Chuck Roberts has a page of Celiac Media contacts and Food Manufacturers. It has email and web URLs of nationwide news organizations/shows and food manufacturers. There are also links to email all news orgs or all food orgs at once.
Amy Wordelman has a site on Cooking Without Wheat and Gluten. Includes a recipe for Rice Bread From Whole Brown Rice.
Jean Fremont has a page on Celiac Awareness Week in Canada. Also has page on the Celiac Disease Conference in NYC on Saturday, November 9, 1996. Also see list of 800 numbers for Canadian food manufacturers.
Mary Brooke, B.Sc.Nutrition, has a web site on Gluten Intolerance/Gluten-Free Diet. Includes a general overview and some recipes.
Coeliac Disease or Allergy to Wheat. A few pages from the UK. Includes an excellent page on History of the Coeliac Condition.
Sandra J. Leonard has a food oriented page.
Dave Q has put up a page on Celiac's [sic] Disease, Gluten Intolerance, and MS. Dave has "recovered" from MS by using diet and supplements.
Michelle Akers, an olympic athelete diagnosed with chronic fatigue syndrome, has a web site on her diet. It is gluten and dairy free.
Allan Gardyne in Australia has a page with some recipes.
Hans Björknäs in Finland has a file about celiac disease, intracerebral calcifications and epilepsy.
Celiac term paper by Rene' Delehanty of Kansas State University.
The Clan Thompson sells two pocket guides: Gluten Free Pharmaceutical Products and Living WHEAT FREE and Without Gluten. Excerpts are at the web site. Clan Thompson also has The Gluten Page.
The MS Dietary Home Page has recipes that are gluten and dairy free.
Ruth Pope has posted a variety of Gluten Free Recipes on her web page.
Jess's Home Page is a cute site by a celiac kid.
Treasure has the celiac story of her son.
The Celiac Sprue Support Page has a collection of recipes, and Austin's story.
Chris Sparnicht has a questionnaire on a possible connection between gluten consumption and Tinea pedis (Athlete's Foot). Here is a survey description.
GF inns can be found at Inn-Seekers. Click the button for Gluten-Free Diet Inns.
Mindy Collier has put up a Phoenix GF Restaurant Guide.
Celiac Resources is a page by Mike Coombs.
Thomas Viehof in Germany has some versions of Restaurant-Cards in different languages.
Joel Elias has a page with things of local interest for people with CD/DH in the Rochester, NY area.
Charles Brandt has a site of Celiac Info. Includes a list of restaurants in DE-PA-MD-NJ.
Here's a site in Italian put up by Emanuele Ortoleva. It also has a biopsy image. Also a page with table of celiac words in many languages.
Here's one in German put up by Christopher Liebrich.
Velten sans gluten is a french site put up by the parents of a two year old celiac. A lot of information on his diet.
Hans Björknäs of The Wasa Workgroup on Intestinal Disorders also has several pages on celiac disease in Finnish and Swedish. They are off his home page.
Enfermedad Celiaca is from Argentina and in Spanish.
Celiac Disease
is the National Digestive Diseases Information Clearinghouse's overview page.The Combined Health Information Database has lots of references to celiac related information. Go to "simple search", enter celiac in the search term, set the number of documents per page to 100 or MAX, and then hit search.
Prof. Markku Mäki, Institute of Medical Technology, University of Tampere, Department of Paediatrics, Tampere University Hospital in Finland has a site. It highlights their project that seeks to widen the definition of celiac disease and their statement that they have proof that there is a condition that they are calling celiac trait that runs in families of celiac. It has a good list of publications.
Changing Features of Coeliac Disease is the next scheduled scientific meeting to be held July 10-12, 1998, in Tampere, Finland. Speakers include the world's finest celiac researchers and attendance is NOT restricted to medical professionals. The program will be in English. Proceedings of the 7th International Coeliac Congress 5 - 7 September, 1996 in Tampere, Finland are now available.
Dr. Kalle Reichelt of the Pediatric Research Institute in Oslo, Norway has been researching the impact of gluten, gliadin and casein intolerance on certain individuals with developmental delays. A collection of his Net articles contain papers on the connection between Mental Disease, Autism, Allergies, etc., and Celiac Disease. Talks of the opioids formed in the gut. It is 80K and technical.
Here is a 1K abstract taken from a journal paper written by Dr. Kalle Reichelt. It was put up by the AIA, or Allergy-induced Autism Support and Research Network. Their home page.
From the Neolithic Revolution to Gluten Intolerance: Benefits and Problems Associated with the Cultivation of Wheat, by Luigi Greco. A history of gluten intolerance and why it is so common.
Coping with Celiac Disease is an article in the Tufts University Health & Nutrition Letter.
Gluten intolerance is now a recognized cause of brain calcifications and epilepsy. Here are a bunch of Medline abstracts on this.
Dr. Joseph A. Murray, of the University of Iowa, a gastroenterologist specializing in treating celiac disease, gave a talk entitled "Celiacs in the 90s" at the American Celiac Society conference on June 10-11, 1994. This page has the highlights. Here is a bio on Dr. Murray, and here is a 122K image of him.
Celiac Disease and Gluten Sensitivity. An introductory write-up in 14K by Carol E. Semrad, M.D., of the gastroenterology department at Columbia U.
This page has a detailed discussion of the genetics of celiac disease. It is from a database of articles on Mendelian Inheritance in Man from the National Center for Biotechnology Information (Johns Hopkins U.). They also now have a page on DH.
The New England Journal of Medicine has an editorial and an article in the May 2, 1996 issue: The Many Faces of Celiac Disease and The Prevalence of Occult Gastrointestinal Bleeding in Celiac Sprue. Occult Bleeding also has Correspondence. In the May 16, 1996 issue there is a case history: A 79-Year-Old Woman with Anorexia, Weight Loss, and Diarrhea after Treatment for Celiac Disease.
The NEJM also has had articles on the oats controversy: The original article: A Comparison of Diets with and without Oats in Adults with Celiac Disease. An Editorial and some Correspondence.
A NEJM issue has a letter signed by two doctors calling for earlier detection of celiac disease in patients, who may present with subclinical symptoms or who fall in high risk categories, as a way of preventing T-cell lymphoma associated with celiac disease.
The New England Journal of Medicine has a letter Absence of Toxicity of Oats in Patients with Dermatitis Herpetiformis from some doctors advising celiac pateints not to consume oats.
This site from the U. of Virginia is organized as an answer and case discussion about the various causes of diarrhea in children. Comes from an unenlightened medical establishment that says celiac disease is very rare in the US and that cystic fibrosis is the most common. Says "In most cases, the diarrhea is more an inconvenience than a serious health problem." Has a okay picture of a biopsy (click here for an enlargement). Also one with immunofluorescent staining.
An abstract on "Measurements of the jejunal unstirred layer in normal subjects and patients with celiac disease."
Celiac Disease in Children. A 5K introduction from the Vanderbilt U. Pediatric Library.
A page on what celiac researcher Martin F. Kagnoff, M.D. at UCSD is up to.
Paul Shattock at the U. of Sunderland in the UK has a page on The Use of Gluten and Casein Free Diets with People with Autism.
A letter about a young woman with bone fractures due to calcium absorption problems from undiagnosed celiac disease.
Human Genome Project, TCR g, CD3, IgHC Immune System Genes. This page from the U. of Victoria mentions coeliac disease.
Cornell buries its celiac discussion in the middle of a huge 103K page on gastrointestinal diseases. This page needs some chopping up. Use the find button to find celiac. Has four good biopsy images.
U. of Pennsylvannia has a small celiac discussion in the middle of a 19K page on inflammatory disorders of the intestines.
Introductory Anatomy: Digestive System, by Dr D.R. Johnson in Leeds, UK. Easy to read.
Wayne State U. Pharmaceutical Biochemistry has a course on Carbohydrate Metabolism.
The U. of Wisconsin Library has a page with some Celiac Resources.
Good 15K discussion of Selective IgA Deficiency from The Jeffrey Modell Foundation. Mentions association with celiac disease.
The U. of Kansas Medical Center has put up two small intestine villi biopsy images, normal and one with loss of villi and elongation of the crypts.
The U. of Utah has a lovely pair of normal/bad biopsy images under a low power microscope. And here's one under high power microscope.
An endoscopic image, from the GI Research Group at the U. of Calgary, showing typical "scalloping" of the duodenum folds in gluten-sensitive enteropathy. And another like image. And here are two endoscopic images, one of the descending duodenum with a definite paucity of folds and fine scalloping at their edges.
The U. of Michigan has two images of positive celiac small intestine biopsies.
Gastrolab in Finland has several pages on celiac endoscopy. Here six endoscopic images highlight the slight granulation in the duodenal mucosa that is seen in celiac disease. Here are some more images and images of a urticaria reaction in the mucosa in a patient with celiac disease.
The UMKC School of Medicine has put up six dermatitis herpetiformis images. Full size pics can be obtained by clicking on the thumbnail sized ones.
The Dermatology Online Atlas (based on the Erlanger Image Database in Germany) has nine thumbnail images of the DH rash. Click on them for a description.
The U. of Iowa has two images of DH: biopsy, Direct IF. These are from the Image Index.
The Internet Dermatology Society has an image of DH on the dorsal arm. A pretty severe case that had not been scratched recently. Not for the squeamish. From their electronic textbook on blistering diseases.
Has a histopathology image of DH amongst an enormous page with many other images from a photo CD.
CSA/USA, Inc.
, the largest celiac sprue organization in the US, has a new site.The Celiac Disease Foundation has a site.
The Raleigh-Durham group has the Triangle Area Celiac-Sprue / DH Support-Group Web Site with local information. It is oriented towards those newly-diagnosed.
Marty Weeks has put up a page for the Wichita Celiac Support Group.
Canadian Celiac Association
has their official website up.The Edmonton Chapter of the Canadian Celiac Association has very detailed information on the chapter and its activities.
Hamilton (Ontario) Chapter of the Canadian Celiac Association has created a site.
The Sarnia-Lampton Support Group of the Canadian Celiac Association has a summary page.
The Austrian Celiac Association has a homepage.
DeVlaamse Coeliakievereniging is the site of the Belgium group.
The Finnish Coeliac Society has put up a web site.
Homepage of the German Celiac Society.
The Directory of Irish Health Care has an entry for the Coeliac Society of Ireland.
Associazione Italiana Celiachia has a cover site for the national and groups throughout the country. In Italian. Also Liberi dal glutine is a site by them.
Nederlandse Coeliakie Vereniging has a site. Also a press release in English.
Celíacs de Catalunya is an association in Spain. Also see the page of the Asociación Celíaca de Cantabria.
The Coeliac Society of the UK has a web site.
Asistencia al Celiaco de La Argentina
has a site in Spanish.American Family Physician magazine has an article Detecting Celiac Disease in Your Patients by Harold T. Pruessner, M.D. Also see patient handout on celiac disease.
The origins of agriculture – a biological perspective and a new hypothesis by Greg Wadley argues that the shift to cultivation and animal domestication was due to the "comfort" derived from the opioid peptides from gluten.
The Vegetarian Society UK has a Gluten-Free Diet Information Sheet. Includes nutritional advice. They also have a good page on various cereal grains. Many of the ones discussed are gluten-free, and so noted. Also a page on Food Allergy & Intolerance.
North American Society of Pediatric Gastroenterology and Nutrition (NASPGN) has a 30K page that is A Guide for Children, Teens, and Their Families.
The Detroit News had on article Against the grain: Celliac [sic] suffers find a strict diet is the only solution to their war on wheat in their Monday, April 14, 1997 issue.
Stephen J. Gislason MD has a food-related disease web site Solutions for Digestive Disorders. Starts out with an introduction to the Gastrointestinal Tract. Several pages there are relevant to celiac disease. Gluten and Cereal Grain Disease has a good discussion on the various toxic proteins. There is one on Dermatitis Herpetiformis. Food Allergy and the Digestive Tract has a section on celiac disease.
A broad overview of gluten intolerance extracted from "Nutrition Therapy" by Stephen J. Gislason, MD. This is the newsgroup version from alt.support.food-allergies.
Gluten-free Cookie Recipes is part of a site that is nothing but cookie recipes.
Here's a 12K summary on Celiac Sprue from MedicineNet.
Autosmoooth-muscle Antibodies in the Diagnosis and Follow-up in Celiac Disease is in Spanish, though there is an English summary.
A question and answer page on gluten intolerance that is part of a series on "Ask the Dietitian" by Joanne Larsen, MS RD. Could use a little editing.
Here's a 6K outline from the PedBase, A. Gandy.
TRCR organizes GF Trail Rides.
The West Bend Recipe Corner has some GF bread recipes.
Sprue-Celiac Disease. Has a brief introduction.
Specialty Laboratories
is a lab that has been doing celiac testing for a long time. They have a overview page on Celiac Disease (Gluten-sensitive Enteropathy) that also lists the various tests with ordering information.The U. of Michigan has an online pathology handbook designed for internal use. In a database of Tests, Collection Instructions/Interpretation, several are relevant to celiac testing. You must now enter a word and search for the test. Enter these keywords: Gliadin, Endomysial, Reticulin, Complement C3, HLA - A, Skin Biopsy.
The University of Tampere Institute of Medical Technology Service Laboratory does serum testing and sells tests. Page has an image of a positive endomysium antibody test pattern.
INOVA Diagnostics, Inc. has a page on Anti Endomysial & Reticulin Autoantibodies. Includes two immunofluorescence images.
An article in a newsletter: The Serologic Diagnosis of Celiac Disease: Antigliadin, Antireticulin and Antiendomysial Antibodies.
Genesis Diagnostics in the UK specialises in ELISA based diagnostic test kits. Included are gliadin antibodies, IgG and IgA. They also have a rapid test done from a finger prick: Gliadin IgG DOT Test.
Great Smokies Diagnostic Laboratories has tests for Anti-Gliadin Antibodies.
This page is promoting the Gluten-free Cookery cookbook. Has 42K graphic of the book.
The Gluten-Free Dessert Cookbook by Connie Sarros has 162 recipes and can be ordered off the web.
This page is selling Full Of Beans by Violet Currie Kay Spicer.
The Wheat Free Kitchen is promoting a book by food columnist and cookbook author Jacqueline Mallorca. Another book is on the way.
Elaine Gottschall, author of Breaking the Vicious Cycle, has a diet that is more restrictive than gluten-free, and is used primarily by patients of inflammatory bowel diseases. Includes almond flour based recipes. Mik Aidt in Denmark has an extensive web site on the Specific Carbohydrate Diet. Has archives and 2MB of material. Two general discussions that include sections on the Gottschall diet: Crohn's Disease and Ulcerative Colitis and Inflammatory Bowel Disease Update, by Ronald Hoffman, M.D. This site has a slick promo on the Gottschall book. Includes Chapter 1 of the book. The I.B.Details © newsletter had two articles on the diet. In the: Winter 1995 and Spring 1995 issues. Yogurt24 is a site dedicated to help spread the news about the Specific Carbohydrate Diet. The site contains lots of sections for interaction from SCD participants. And the Health Action Network Society has a 1 hr video you can buy of her speaking at Health Action '92. There is a Gottschall Diet mailing list at: listserv@maelstrom.stjohns.edu. To join, send a message to the list server with SUBSCRIBE SCD your full name in the body of the message. Also see the mailing list archives.
Gluten-Free Desserts is a cookbook by Connie Sarros.
Abundant Harvest
has products available for Special Diets including Celiac Sprue.AKiN'S Natural Foods Market has a list of many gluten-free foodstuffs that they will sell by mail order. It's a good list of gluten-free foods in itself.
Allspice Bakery has gluten free muffins.
Always Natural Foods, a store in Beavercreek, Ohio, has a section on the Gluten Free Products that they carry. They carry all the popular things and will also sell by mail order anywhere.
Amero Foods Mfg. Corp. sells a flourless chocolate cake mix in 25 lb bags for $68 (makes 50, 8" cakes). Uses hazelnut flour.
Authentic Foods has a page listing their product line. They specialize in bean flours and mixes. Higher protein than the flours from the grass family.
Dietary Specialties has a web site that describes and lists the ingredients of their entire product line.
De-Ro-Ma, a firm in Quebec, has an extensive line of gluten-free products that they import from all around the world.
Ener-G Foods has a web site with their extensive line of products.
Food for Life Baking Co. has a site which sells their breads and banana muffins online, and also has a search facility to find a retailer near you.
Freeda Vitamins has a huge selection of gluten-free minerals and vitamins that can be ordered online. Also they have some recommendations for people with CD.
G! FOODS, a San Francisco based mail-order supplier of gluten-free cookies and snacks.
Gillian's Foods specializes in gluten free rolls and other bread items. People rave about them.
Jowar Foods sells sorghum based food products. Site includes information, products, and recipes.
Juvela makes some GF products for the UK and Ireland. Most of the products contain wheat starch, which has a small amount of gluten. Only the Harvest Mix is truly gluten-free.
Kingsmill Foods offers GF rice bread, cookies, a baking mix, and egg replacer.
Kinnikinnick Foods Inc., in Canada, has a store and distributes 500 products that are 100% gluten-free. Control is so strict that employees may not even bring gluten containing foods onto the premises.
Kozy Shack, Inc. has some gluten and dairy free puddings.
Lifestyle Healthcare is the premier UK producer of top quality, fresh, gluten-free foods.
Liv-N-Well Distributors' Online store has a page with a list of gluten-free cereals, pastas, breads, flours, and mixes. Prices are in Canadian dollars.
Lundberg Family Farms, a rice specialty house.
Med-Diet, a supplier of various types of special foods, has a variety of gluten-free products that are available by mail-order.
Memory Lane Confectionery is a small South Australian Confectionary that specializes in high-quality, strong, natural flavoured, hand made gluten-free confectionery.
Menu Direct will be selling fully prepared gluten-free foods delivered directly to your door.
Miss Roben's, a vendor of gluten-free baking mixes.
Natural Noodles sells a line of pastas made from pulses. These include split yellow peas, lentils and mung beans. They also have some rice and wild rice noodles.
Nu-World Amaranth has a product line of amaranth products.
Orgran Gluten Free Foods by Roma Food Products is Australia's leading brand of wheat-free, gluten-free foods.
Protegrab International Group imports gluten-free products of brand Kapac made in Argentina. Kapac is the first South American company exclusively dedicated to the research, development and elaboration of food products for gluten-free diets. Mostly pre-mix flour products and cakes.
Suppliers of ethnic foods for people of the Caribbean and Central & South America. Raymond-Hadley Corp. specializes in South American and other exotic cuisine, with about 100 items of Peruvian foods. Not all are GF, but most are. Knowing some Spanish will help. Sold in bulk only. E-mail for prices.
Schär has a line of gluten-free products that is available in Europe and Canada. There are also several forums you can write comments to, and a section of recipes.
Specialty Food Shop in Toronto/Hamilton, Ontario carries one of the most extensive selections of gluten-free products.
Special Foods! has lots of unusual GF Flours. Included are: white sweet potato, cassava, malanga, yam, lotus, amaranth, milo, water chestnut, artichoke, buckwheat, and quinoa. Many other GF foods.
Stokes Pharmacy has a page on their services for celiacs. If necessary a medication can be compounded without gluten.
Sylvan Border Farm, a vendor of various gluten-free flours and a few mixes. Lots and lots of graphics. Or buy the mixes from here: Mendocino Gluten-Free Products, Inc.
Tamarind Tree - The Taste Of India has a dozen gluten-free shelf stable dishes that can be heated in five minutes. In the next year they will be adding 32 more items to their menu.
The Gluten-Free Pantry, Inc. has a site that describes their entire product line in full detail. Heavy on the baking mixes. Also some foods and baking accessories.
The Wheat-Free Page has a summary of wheat alternatives and where they can be purchased. There are also a couple recipes from Superfoods - Allergy Recipes by Marjorie Hurt Jones, R.N., which is also being sold at the site. Unfortunately the site is very slow to load.
Trader Joe's has a gluten free product list for their East Coast stores. The list for the West Coast is being updated.
Odlums of Ireland sells some gluten-free products there and in the UK under the Tritamyl brand name.
Walton Feed sells gluten-free foodstuffs in bulk that can be used in flour mills. They also sell flour mills, see Which Grinder is Best For You?.
Watkins sells pure spices and mixes. A list of their gluten-free products.
Wegman's, a supermarket in upstate New York, has information about shopping for gluten intolerant people.
A small page discussing a coeliac disease test kit developed in Australia.
A page from the baking industry on Occupational Flour Exposure and Screening for Coeliac Disease. Very interesting. From The Lancet.
The Kansas Grain Sorghum Producers Association has a web site. Sorghum, and also a variant called Jowar, are gluten-free.
Tables of contents from Advances in Cereal Science and Technology, a series of books for sale at $80 each. Volume VI gets into the grains in great depth. Includes chapter on the celiac condition. Volume IX includes immunological detection of gluten in foods, and immunological responses to gluten in humans. Volume X has a couple chapters on celiac disease/gluten and schizophrenia. Includes the opioid concept as discussed by Reichelt.
Functions of Baking Ingredients. A solid 15K introduction to gluten's role in cooking.
Perdue has put Magness et al. 1971 online in a huge database with hundreds of crops. Detailed write-ups on each one. Can find the gluten grains and some of the non-gluten ones, and most of what you might want to grow.
An introductory lecture on Flours.
Celiac/Coeliac, Dermatitis Herpetiformis (DH), Wheat/Gluten-Free
is a page describing the mailing list and its archives.There are three mailing lists in English devoted to gluten intolerance. A page announcing the setting up of the first of these mailing lists.
All of the CELIAC mailing list postings have been archived and are available on the web. Also the archives of the CEL-KIDS list are available.
There is now a newsgroup called alt.support.celiac that is independent of the mailing list.
Christopher Liebrich has a list that only is German.
Abigail Neuman has set up a forum and chat on Delphi Celiac Disease On-Line Support Group. Currently, moderated scheduled chats are: Sundays 9-11 PM EST (Richard), Tuesdays and Wednesdays 8-10 PM EST (Abigail), and Wednesday afternoons starting 1 PM EST (Linda).
MedSupport FSF International has two chat rooms for celiac disease. One is unmoderated and open 24 hours every day. The other is moderated and is hosted and only open from 8PM - 10PM EST on Monday nights. Additionally the unmoderated room is moderated on Wednesday evenings at 8 PM for pre-teens and teens. Put 15 for the Automatic Refresh Rate and Click on Frames.
The web-based Celiac Life Discussion Group has continuously threaded messages that allows for a more conversational style of posting than a mailing list.
There is an IRC devoted to Celiac Disease. It is called #celiac and more information is available at IRC FAQ.
Here's a page on a mailing list in Spanish.
Last updated: 11-Oct-98, 20:44 EDT
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Copyright 1996-8 Don Wiss. All rights reserved.
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